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Why Cancer Patients Avoid Clinical Trials - The Surprising Truth

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The field of oncology is rapidly advancing with new discoveries every day aimed at fighting cancer more effectively. Leading-edge cancer drugs are undergoing real-time testing in clinical trials, offering hope and potentially extending the lives of patients who participate.

Financial Barriers in Clinical Trial Participation

A recent study published in the Journal of the National Comprehensive Cancer Network revealed that financial factors, rather than race or background, play a significant role in determining who participates in cancer research studies. The cost of transportation, childcare, and lost wages can act as barriers preventing many patients from joining trials.

Research findings from a study of over 12,000 cancer patients in Ohio indicated that income level strongly influences clinical trial participation. Higher income individuals were more likely to enroll, while lower-income patients, especially those with Medicaid, faced challenges in joining trials.

Addressing Financial Realities for Inclusive Trials

To increase participation rates, researchers suggest strategies such as reimbursing travel expenses, compensating for lost wages, providing childcare support, and offering transportation assistance. Overcoming these financial hurdles can make clinical trials more accessible and inclusive.

The study is expanding to map "clinical trial deserts" where geographic and structural barriers hinder access to medical advancements. By identifying these gaps, resources can be redirected to ensure that clinical trials are available to all communities.

Tips for Patients Considering Clinical Trials

  • Ask for a Patient Navigator to help find trials and secure resources.
  • Inquire about covered costs and stipends for travel and other expenses.
  • Check with organizations like the American Cancer Society for lodging assistance.
  • Review your insurance coverage for trial-related costs.
  • Look for local satellite trials to minimize travel requirements.